Discussing hospice with children is one of the most challenging conversations a parent or caregiver may face. Whether a family member is entering hospice care or a loved one is receiving hospice services, explaining this concept to children requires sensitivity, honesty, and age-appropriate communication. Navigating such a conversation can be daunting, but it’s essential for children to understand and cope with the changes happening within their family. Here’s a guide to help navigate this delicate discussion with compassion:
Be Honest and Transparent: When discussing hospice with children, honesty is key. Use clear and age-appropriate language to explain what hospice care is and why it’s being considered for their loved one. Avoid using euphemisms or vague language, as children may find it confusing and may lead to misunderstandings or fear.
Encourage Questions and Emotions: Children may have many questions and emotions when discussing hospice. Encourage them to ask questions and express their feelings openly. Validate their emotions and reassure them that it’s okay to feel sad, confused, or scared. Listen attentively and provide honest, age-appropriate answers to their questions.
Use Concrete Examples and Visual Aids: To help children understand the concept of hospice, use concrete examples and visual aids whenever possible. For example, you could compare hospice care to the support and comfort provided by a team of caring professionals, similar to how a sports team supports its players. Visual aids such as books, drawings, or videos can also help children grasp the concept more easily.
Tailor the Conversation to Their Age and Developmental Level: Consider the child’s age and developmental level when discussing hospice. Younger children may benefit from simple explanations and reassurance, while older children may be able to handle more detailed information. Adjust your approach accordingly and use language and examples that are appropriate for their understanding.
Emphasize Love and Support: Assure children that hospice care is about providing love, comfort, and support to their loved one during their final days. Explain that hospice teams are made up of caring professionals who are there to help manage pain, provide emotional support, and ensure that their loved one is as comfortable as possible.
Prepare for Continuing Conversations: Discussing hospice with children is not a one-time conversation. Be prepared for ongoing discussions as the situation evolves and as children process their emotions. Check in regularly, answer any new questions that arise, and provide ongoing support and reassurance.
Include children (include link to new article on activities) in activities that can be done with a family member on hospice: Children and teens want you to be honest and show them how to care for and support someone on hospice.
Seek Additional Support if Needed: If you’re struggling to discuss hospice with your children or if they’re having difficulty coping with the situation, don’t hesitate to seek additional support. Consider reaching out to a counselor, therapist, or support group specializing in grief and bereavement for children. These resources can provide valuable guidance and support for both you and your children during this challenging time.
Navigating conversations about hospice with children requires patience, compassion, and understanding. By being honest, encouraging open communication, and providing ongoing support, you can help children understand and cope with the complexities of hospice care while navigating this difficult time together.